Levator Spasms and pudendal nerve entrapment

(North Richland Hills, Texas)

I have had Levator Spasms since 1992. I have taken a lot of medication and have tried EGS and physical therapy. Nothing has helped. Botox is the only thing I haven't tried. I have heard that Botox has made some people worse instead of better. I couldn't imagine this problem being any worse than it is. The last physical therapist said I could possibly have Pudendal Nerve Entrapment. The Pudendal Nerves run vertically down each side of the buttocks near the butt crack, and then branch off to the Levator Muscles, penis, bladder, and testicles. When these nerves are inflamed or entrapped, they can cause burning before and after urination, urinary frequency, urinary retention, Levator Spasms, testicle pain, and pain in the penis. There are only 3 doctors in the U.S.A. I know of who treat this kind of problem. Doctor Hibner is in Phoenix AZ, Dr Renney in Houston Texas and Dr Dellon in Towson, Maryland. More information on these doctors can be found at tipna.org. Ray

Pudendal Nerve Entrapment

Hi Ray, thank you for getting in touch. If this is pudendal nerve entrapment, I wonder whether a course of steroids may help you. The can reduce any oedema around the nerve which may be helpful. Other thoughts would be to try such drugs as Gabapentin or other GABA analogues such as Pregabalin. Ultimately a nerve block may be the only way forward or even surgery to release the nerve.

Thank you for highlighting your symptoms and the doctors in the USA that treat this kind of problem. This is clearly useful for other visitors.


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